Description: Provides information for families and physicians about Von Hippel-Lindau disease, and runs local self-help support groups. Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected.
Disclaimer: All information is supplied by individual service providers and no guarantee can be given as to its accuracy. All details are subject to change without notice. Inclusion of a service does not imply endorsement or recommendation.
Disclaimer: All information is supplied by individual service providers and no guarantee can be given as to its accuracy. All details are subject to change without notice. Inclusion of a service does not imply endorsement or recommendation.