Phone, web or email based service
Email: contact@pmdfoundation.com
Description: A US based foundation supporting programs of education, research, service and advocacy about Pelizaeus-Merzbacher Disease. The foundation provides patients and their families with information about their disease and assistance in identifying sources of medical care, social service, and genetic counseling; establishing a communications network among families; increasing public awareness and acting as an information source for health care providers; and promoting research into causes, treatment, prevention and cure of PMD. This foundation is based in the United States of America.
Org type: Non-government NOT FOR PROFIT organisation
© IDEAS [81569] Last Full Review: 1Aug23