Description: Provides information and support including newsletter and biennial conference, to families affected by this condition. Can also provide contact details of local support groups.
Email enquiries through the website.
Disclaimer: All information is supplied by individual service providers and no guarantee can be given as to its accuracy. All details are subject to change without notice. Inclusion of a service does not imply endorsement or recommendation.
Disclaimer: All information is supplied by individual service providers and no guarantee can be given as to its accuracy. All details are subject to change without notice. Inclusion of a service does not imply endorsement or recommendation.