22q11 Foundation Australia & New Zealand

Phone/email based service



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Description: To inform, to educate and to raise awareness of 22q11 deletion syndrome. Provide support to families affected by Velo Cardio Facial syndrome, Shprintzen syndrome, DiGeorge syndrome and Deletion 22q11 by providing a contact register enabling families of children with similar symptoms to contact each other. The 22q11 Foundation objectives are to raise awareness, disseminate information and provide support to individuals and their families/carers, promote and support education programs and the development of new programs that will enhance the intellectual and social development of individuals with 22q11 and provide information to all members of the foundation.

Fees: None

Area Served: National

Volunteering Note: This organisation welcomes the assistance of volunteers. Contact for further details.

Keywords: Children and Families; Carers; People with a Disability; Shprintzen Syndrome; Support Groups; Community Education; Health Promotion Volunteers; Phone or Web Information Services; Newspapers and Printed Publications; Cleft Palate and Lip

Alternative Names: Formerly Shprintzen Syndrome Support Group, VCFS Foundation of NSW

© IDEAS [2113] Last Full Review: 14Feb20

Disclaimer: All information is supplied by individual service providers and no guarantee can be given as to its accuracy. All details are subject to change without notice. Inclusion of a service does not imply endorsement or recommendation.
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