Genetic Alliance Australia

Phone: 02 9295 8359

Fax: 02 9295 8181

Location: Lvl 6, Garvan Institute of Medical Research, 384 Victoria St, Darlinghurst NSW 2010



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Description: Genetic Alliance Australia provids peer support and information for individuals and families affected directly or indirectly by rare genetic conditions or rare disease. Genetic Alliance provides information and links to support groups, condition specific forums and an annual awareness event. GA-AU has a database of over 1350 predominantly rare genetic conditions/rare diseases.

Hours: Mon-Thu 9am-4pm

Fees: All information services are provided at no charge.

Contact: People who require a language other than English should make contact through the Telephone Interpreter Service (TIS) on 131 450

Transport: Accessible by Bus or Train

Area Served: National

Volunteering Note: Some opportunities to volunteer, contact for details

Keywords: People with a Disability; Physical Disability; Intellectual Disability; Leigh Disease; Support Groups; Health Information Services; Genetic Counselling; Aged and Disability Information Services; Children and Families; Newspapers and Printed Publications; Registered Charity; Addisons Disease; Angelman Syndrome; Ankylosing Spondylitis; Apert Syndrome; Arnold Chiari Syndrome; Arthrogryposis; Aspergers Syndrome; Asthma; Batten Disease; Beckwith Wiedemann Syndrome; Charcot Marie Tooth Disease; Charge Syndrome; Cleft Palate and Lip; Congenital Adrenal Hyperplasia; Cri du Chat Syndrome; Crohns Disease; Crouzons Disease; Cushings Syndrome; Cystic Fibrosis; Ectodermal Dysplasia; Ehlers Danlos Syndrome; Epidermolysis Bullosa; Epilepsy; Fibromyalgia; Fragile X Syndrome; Friedreichs Ataxia; Galactosaemia; Lysosomal Storage Disorder; Guillain Barre Syndrome; Haemochromatosis; Hirschsprung Disease; Homocystinuria; Huntingtons Disease; Hydrocephalus; Hypothyroidism; Klippel Feil Syndrome; Lupus; Lymphoedema; Marfan Syndrome; Menieres Disease; Moebius Syndrome; Motor Neurone Disease; Mucopolysaccharide Disease; Muscular Dystrophy; Neurofibromatosis; Osteogenesis Imperfecta; Osteoporosis; Pagets Disease; Phenylketonuria; Pierre Robin Syndrome; Polycystic Kidney Disease; Raynauds Syndrome; Rett Syndrome; Russell Silver Syndrome; Sarcoidosis; Schizophrenia; Scleroderma; Shprintzen Syndrome; Shwachman Syndrome; Sjogrens Syndrome; Smith Magenis Syndrome; Spasmodic Dysphonia; Spina Bifida; Spinocerebellar Degeneration; Stickler Syndrome; Stuttering; Thalassaemia; Tourette Syndrome; Trisomy 13 Syndrome; Trisomy 18 Syndrome; Tuberous Sclerosis; Usher Syndrome; Velocardiofacial Syndrome; Von Hippel Lindau Syndrome; Von Willebrands Disease; Williams Syndrome; Wolf Hirschhorn Syndrome

Alternative Names: Formerly: Association of Genetic Support of Australasia

Parent Organisation: Genetic Alliance Australia

© IDEAS [7596] Last Full Review: 9Jul20

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