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North Sydney Community Directory

Cure HHT
(Previously known as Hereditary Hemorrhagic Telangiectasia Foundation Inc)

Phone, web or email based service

Email:

Web: www.curehht.org

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Description: This website is operated by the Hereditary Hemorrhagic Telangiectasia Foundation International, Incorporated. HHT Foundation International is a worldwide, non-profit organisation whose purpose is to support patients and families and educate medical professionals. This site is dedicated to the individuals and medical professionals who encounter the daily challenges of managing Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome. HHT is a genetic disorder, which affects blood vessels. This disorder is worldwide affecting males and females of all races and ethnic groups. Up to 1/3 of HHT patients can have multiple organ involvement, which can be disabling and/or life threatening. HHT can be treated successfully if correctly diagnosed.

© IDEAS [2208] Last Full Review: 14Jun23

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Disclaimer: All information is supplied by individual service providers and no guarantee can be given as to its accuracy. All details are subject to change without notice. Inclusion of a service does not imply endorsement or recommendation.
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